BRAIN TUMOR

Join DWBHshirts WARRIORS 5 K WALK 8/26/12

Please click to print Sponsor sheet.  Community service hours will be given to all High School kids that participate, please bring your forms for signatures.

PLEASE buy a Dont Worry Be Happy shirts – help us have 500++ walkers thru Laguna
JOIN OUR WALK 8/26/12 and SPONSOR A WARRIOR. REQUEST SPONSOR SHEET VIA EMAIL TO mina@DWBHshirts.com or call 949-715-6789…
If you cant make it PLEASE DONATE (100% Tax Deductible)…
every dollar adds up and helps!
PLEASE SHARE on YOUR WALL

Email mina@DWBHshirts.com your requested start time and how many walkers

call 949-715-6789 with questions

DWBHshirts brings DWBH warriors families together in the Caribbean

Hi Mina,

My name is Julie and I am Liz Lord’s second mama (Casey’s mom).  I’ve got tons of your DWBH shirts and have passed your website onto many friends.  But something truly amazing happened a couple of weeks ago that I wanted to share with you…..

My guy and I were down in the Grenadine Islands (very south Caribbean) getting ready to take a 10 day sailing vacation.  We were on the small island of St. Vincent, at an even smaller sailboat charter company called Barefoot, when I saw a man wearing a DWBH t-shirt come walking up the dock.  Of course I had to stop him and we shared stores about our “warriors” Liz Lord and Jennifer Randolph.  We chatted about them and our sailing, then went our ways.  

But about 10 minutes later his wife, Jodi, found me in the restaurant and introduced herself.  There seemed to be an instant bond between the two of us — women who love our warriors so much and yet met in the middle of the caribbean ocean because of a t-shirt!  She said she had brought some tees with her to take pictures throughout her sail, then handed me one of her shirts.  She said to take pictures for Liz in the shirt and let her know that she’s always in my heart.  I cannot tell you how special that was.  I did take her shirt, and had soooo much fun taking pictures everywhere — staging the “I am the king of the world” shot from the Titanic, staging shots in the dinghy, etc.  Every time I pulled out that shirt and took a snapshot, I thought of Liz, of Jennifer, of Jodi and of you, Mina.  How your website and shirts are not only supporting our loved warriors, but making heartfelt connections around the world.  Thank you for that.  And thank you again, Jodi, for reminding me that we are all connected.  

Here are some of the fun shots of me in Jodi’s shirt, loving Liz.  

Keep up the great work, Mina. 

Julie

http://dwbhshirts.com/donate/liz-lord/ Liz Lord’s warrior page

http://dwbhshirts.com/donate/jennifer-randolph/  Jennifer Randolph’s warrior page

The Herrin brothers support DWBHshirts!

Thank you to the Herrin family for supporting DWBHshirts warriors.  We ALL love the Herrin’s!

DWBHshirts celebrates the life of David S. Parker today!

Sending Lots of Love and prayers today to the Parker family. We love you Karin, David and Trevor.

Meet DWBHshirts new warrior Phillip Bacigalupi

Phil Bacigalupi

33 years old
Grade III anaplastic astrocytoma
 
My name is Phil Bacigalupi, and I am a 33 year old elementary school teacher.  I was diagnosed with a brain tumor on May 19th, 2011 and had it removed on June 27th, 2011 and spent my summer recouping from having brain surgery.  My symptoms began over a year ago with migraines, blurred vision and a numb left hand at our house warming party.  I thought it was stress related from being overly social with all of our guests.  I went to the doctor, who came to the conclusion that it was just a sinus infection.  My symptoms became more and more frequent until a year later when my hand, jaw and leg went numb on the left side of my body.  When I stood up to walk, my leg did not work for about 10 minutes, and I found out later that I was having focal seizures.  I went to the doctor thinking it was heart related or maybe a stroke, but that I also wanted to see pictures of my brain because something wasn’t adding up.  He finally agreed that my symptoms seemed odd, especially for someone my age, so I had an MRI.  The next day on my lunch break I got the call that there was a mass was in my brain.  I went to the doctor thinking, “I’ll believe it when I see it.”  I saw it, and it took me about a minute to realize that that interesting looking thing on the screen was in MY head.  The lesion or mass or tumor or whatever you want to call it, was the size of a potato or avocado.  It was located between the motor and sensory cortexes on the right hemisphere of my brain.  That explained the loss of sensation and seizures on the left side of my body. When I saw the images of the tumor on the computer screen of the MRI, I got sick.  I got over it.  I didn’t allow myself to be scared again after that moment, hence my new nickname: “Tough as Nails” or TAN for short.  When it was removed I woke up in the hospital alive and well with lots of love in my corner.  I am also the proud new owner of the biggest, coolest scar of anyone I know in the shape of a giant question mark on the side of my head.  To me, that scar represents my survival, so I am proud of it and I don’t mind if people stare or ask about it, (it isa question mark after all). The only other time I got scared, other than when I found out about the tumor, was when I got a phone call from UCLA saying that my biopsy came back grade III anaplastic astrocytoma.  In other words, I have brain cancer.  The hardest part was breaking the news to my wife about the tumor, and then once again when I found out I had cancer.  She’s tough as nails too and I couldn’t have gone through any of this as well as I have without her!

Recuperating was a long road thus far, and I have come a long way from learning to walk again in the hospital.  I have now been cleared for all physical activity, in moderation, which is great news since I am such an active person.  I can’t wait to surf and snowboard again soon.  After the surgery, I was left with a numb left hand and a droopy let side of my mouth.  I am still waiting for the sensation to come back in my hand, but I am training it to play guitar again even though it can’t yet feel the strings completely.  I am also waiting for my lip to return to normal so I can speak and eat without it getting in the way.  Hopefully it will all go back to normal when my brain swelling goes away completely, but if not oh well.  I am just happy and lucky to be alive!

As a survivor, people say that I am an inspiration and I am glad.  To me though, the real inspiration has come from all of the things that people are willing to do to help in any way they can to help get me through this and keep my spirit “Tough as Nails”.  This hasn’t been an altogether bad experience for me though because I’ve never had as much positive energy surrounding me as I have ever since I found out about my brain tumor.  I don’t always know how to receive this kind of thing, but one weird side effect is that I catch myself smiling for no apparent reason at odd times like when I am using the stair climber at the gym or even when I am just taking my dog Jake for a walk.  I catch myself doing it and realize that I was smiling because I was thinking about some great person who went out of their way for ME to help me out.

I am now finished with radiation and am currently beginning my chemo therapy treatments.   It has not been easy on us financially because I had to spend my summer recuperating instead of working, and my wife Stacy had to spend her summer as my main caretaker instead of working.  Since finding out about the tumor, we have had constant hospital visits, many new prescriptions, lots of co pays, and all of the everyday expenses of life in general, which have taken their toll on us financially.  Our most recent realization was that my chemo therapy treatments combined with my other prescriptions will cost us well over $100.00 a month in prescriptions alone for the next 2 years.  We have kept a positive outlook on everything surrounding our lives since being dignosed with the tumor and then cancer.  The phrase on the Dont Worry Be Happy shirt pretty much sums up our attitude about all of this because all of this has given Stacy and I a whole new appreciation for life!  If you are purchasing a “Don’t Worry Be happy shirt to show your support, we appreciate it more than you know.  When you see us smile at you when you wear it, I hope you know how happy it makes Stacy and I to know that you are wearing it because you care!

I know that there is always someone out there who is going through a tougher time than me no matter what, so I consider myself fortunate to be doing as well as I am. My heart goes out to EVERYONE in this fight.  Thank you my wife Stacy, my hero Dr. Liau at UCLA, Team TAN (which includes everyone who’s been there for me through this) and thank you to everyone for your support.

 

Don’t Worry Be Happy!!!
Much Love!
“Tough as Nails”
Philly

Irene Komar in DWBHshirts supporting our troops and warriors

Thank you Irene Komar for supporting DWBHshirts warrior, Scott Gohl and our troops!

Wear Red every Friday to support our troops, what better way than in a Dont Worry Be Happy shirt and help a DWBHshirts warrior at the same time!!

Dont Worry Be Happy shirts team at the Brain Tumor Walk 9/17/11

Here is a part of those that walked with Dont Worry Be Happy shirts last Saturday 9/17/11.  Thank you to all of those that came out and supported DWBHshirts warriors!

Jillian wears Dont Worry Be Happy shirts to doctor appointment for her dad!

“Jillian loves her Dont Worry Be Happy shirt.  We traveled up to Santa Monica for a Dr. appt for her Dad.   Her Dad, MRI results were good!!!

The old folks loved the message on her shirt. Thanks again!”   ~ Joanie

Jim and family are in our daily positive thoughts and prayers. We LOVE hearing good news!!

Dont Worry Be Happy shirts in beautiful Niagara River, Buffalo, New York

Thank you Irene Komar for spreading DWBHshirts in Buffalo, New York and supporting Scott Gohl.

 

Join Dont Worry Be Happy shirts team @ The Brain Tumor Walk 9/17/11

Thank you to our DWBHshirts team last year.  Let raise MORE money  this year for DWBHshirts participating warriors.   We  hope you all will join us again this year and bring friends!

Time
Saturday, September 17 · 8:00am – 11:00am

Location
Mile Square Regional Park, Fountain Valley, CA
 

Created By

More Info
Saturday September 17, 2011 | Mile Square Regional Park, Fountain Valley, CA 8 am in Memory of KEVIN CARLBERG AND DAVID S PARKER, DOROTHY FUJIWARA, MAX LARIOS, TOM RUSSIE and SCOTT GOHL.
 
Help our Don’t Worry Be Happy shirts Brain cancer warriors , JAIME YBARRA, MAX LARIOS FAMILY, SCOTT GOHL’S FAMILY, LIZ LORD and ED ROBERTSON pay their medical bills by joining our team.

…STEP 1
REGISTER with Dont Worry Be Happy shirts team http://dwbhshirts.com/donate/brain-tumor-walk/

Step 2
DONATE ~ a Minimum donation of $20 (Tax Deductible) will get you a free DWBH Dog tag — PLEASE GIVE MORE – EVEN IF YOU CAN’T COME
http://dwbhshirts.com/donate/brain-tumor-walk/
Click Donate (Tax Deductible)

STEP 3
Buy and wear a NEW DWBHshirt
http://www.dwbhshirts.bigcartel.com/
Please pass this along and SHARE with everyone you know.

Imagine needing a MRI, radiation or chemo , or clinical trials KNOWING you have Brain cancer and can’t afford to pay for it.
Pick your warrior TO DONATE TO!

ANY QUESTIONS EMAIL mina@DWBHshirts.com